Help to those who were recently diagnosed with neurofibromatosis

Good afternoon!

So now that you have a little info about neurofibromatosis, i am now going to talk about Neurofibromatosis and about being recently diagnosed. Obviously if you are recently diagnosed with anything there are always tons of questions, the most frequent one being "what now?".  According to www.ctf.org, here are the first steps if you or a loved one has been recently diagnosed with neurofibromatosis.

- get the facts

- Enroll in the NF Registry

- find a doctor that knows about NF

- Get support

- Find a doctor that knows about NF

- Stay in touch

- Join our advocacy outreach

- Get involved

- Ask Ask Ask

if you or a loved one have recently been diagnosed with neurofibromatosis, visit a support page

http://www.ctf.org/Community-Relations/Community-Relations-Homepage.html

you can click on your state and find a support group near you today! 

- Kara