Wednesday, April 29, 2015

Events...Events...Events

So what are some big events that are held to raise awareness and money for Neurofibromatosis awareness? There are tons of fun events that you can choose from in an area near you.

 Great Steps 4NF: The Great Steps 4NF™ Walks include the largest walk for NF in the country in Naperville, IL. These walks bring co-workers, friends and family together as one community for the neurofibromatosis cause

Run 4NF: NF Midwest

Walk on the Wild Side: Pittsburgh Zoo Walk for NF

Annual Golf Outing: Pittsburgh, PA

There are many many more events that are available and you can even create your own!
do some research, and support the events around you that are in support of Neurofibromatosis. 

have a great day readers!

kara

Monday, April 27, 2015

Neurofibromatosis Summer Camps

Good afternoon readers!


So do you or your  child have the genetic disorder Neurofibromatosis? If so, here is an awesome opportunity for your child to meet some friends that they can truly connect with. There is a summer camp that kids and young adults with Neurofibromatosis can attend and it is called Camp New Friends or Camp NF. It is a fun and supportive environment for young people with Neurofibromatosis. I would highly recommend trying it out or making a donation to the camp, it can make a huge difference!Camp New friends gives young people the opportunity to interact with older people and volunteers that live effectively with the same condition and give them hope for their future







2015 Camp New Friends Dates:
July 19-25, 2014
High View, WV