So what are some big events that are held to raise awareness and money for Neurofibromatosis awareness? There are tons of fun events that you can choose from in an area near you.
Great Steps 4NF: The Great Steps 4NF™ Walks include the largest walk for NF in the country in Naperville, IL. These walks bring co-workers, friends and family together as one community for the neurofibromatosis cause
Run 4NF: NF Midwest
Walk on the Wild Side: Pittsburgh Zoo Walk for NF
Annual Golf Outing: Pittsburgh, PA
There are many many more events that are available and you can even create your own!
do some research, and support the events around you that are in support of Neurofibromatosis.
have a great day readers!
kara
Wednesday, April 29, 2015
Monday, April 27, 2015
Neurofibromatosis Summer Camps
Good afternoon readers!
So do you or your child have the genetic disorder Neurofibromatosis? If so, here is an awesome opportunity for your child to meet some friends that they can truly connect with. There is a summer camp that kids and young adults with Neurofibromatosis can attend and it is called Camp New Friends or Camp NF. It is a fun and supportive environment for young people with Neurofibromatosis. I would highly recommend trying it out or making a donation to the camp, it can make a huge difference!Camp New friends gives young people the opportunity to interact with older people and volunteers that live effectively with the same condition and give them hope for their future
2015 Camp New Friends Dates:
July 19-25, 2014
High View, WV
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