Awareness about neurofibromatosis is important because not a lot of people are aware that it exists. Only 1 out of 3,000 people have NF1. So it is not too common. Even though nf is not too common, it is still crucial that you get the word out in any way you can. Raise awareness or raise money. Just don't try to sell cookies on a college campus cause apparently that doesn't work too well. May is neurofibromatosis awareness month. What are you going to do?
Kara
