Hey readers,
I know i haven't been blogging lately (Very sorry)! I have been very busy. id like to use this post to ask if anyone has any events coming up that you would like me to put on here for everyone to see!
send me an email at: kxk1060@gmail.com
i look forward to hearing from you and posting more
Tuesday, December 1, 2015
Monday, May 4, 2015
sources of inspiration
Blog Inspiration
Hi readers!
What have i encountered in my day to day life that has inspired some potential improvement to the design of my blog? I believe that just using the internet and conducting research on other sites about what i have been blogging about has inspired me. I believe that I was inspired to focus on what we can do to raise awareness and money for the cause.
One of my main sources of inspiration for design has been the blog on neurofibromatosis' set up and design on The Children's Tumor Foundation site. Living with NF has also inspired me to create this blog. I chose the colors white and green because Green is one of the colors for NF. One more source of inspiration is another blog about Neurofibromatosis, http://nfpain.blogspot.com. they have some great and touching posts, you should definitely check out if you are interested. It definitely inspired me and I'm sure it will inspire you as well.
Color of inspiration, as i said was green, the two colors of the NF ribbon for awareness are green and blue so i took the layout for my blog with Green in it.
Hi readers!
What have i encountered in my day to day life that has inspired some potential improvement to the design of my blog? I believe that just using the internet and conducting research on other sites about what i have been blogging about has inspired me. I believe that I was inspired to focus on what we can do to raise awareness and money for the cause.
One of my main sources of inspiration for design has been the blog on neurofibromatosis' set up and design on The Children's Tumor Foundation site. Living with NF has also inspired me to create this blog. I chose the colors white and green because Green is one of the colors for NF. One more source of inspiration is another blog about Neurofibromatosis, http://nfpain.blogspot.com. they have some great and touching posts, you should definitely check out if you are interested. It definitely inspired me and I'm sure it will inspire you as well.
Color of inspiration, as i said was green, the two colors of the NF ribbon for awareness are green and blue so i took the layout for my blog with Green in it.
For typographic inspiration, i did not really have one. I went with the traditional and normal typography, not only because it is easier to read, but it is general and the main font.
So in conclusion, I was more inspired from my life experiences dealing with Neurofibromatosis when it came to creating this blog, I was inspired by an additional blog about this disorder, and i was inspired with the color green because that is the color of the awareness ribbon.
thank you for your time and interest
kara
Get involved- NFCA pittsburgh
Good evening readers,
If you or a loved one have neurofibromatosis and are from Pittsburgh Pennsylvania, you should look into, and become more involved in the NFCA. The NFCA is a non-profit association that is dedicated to raising awareness and supporting families with neurofibromatosis. Their vision is a world that neurofibromatosis is no longer an incurable condition. There are many ways you can get involved!
visit nfpittsburgh.org for more information!
kara
If you or a loved one have neurofibromatosis and are from Pittsburgh Pennsylvania, you should look into, and become more involved in the NFCA. The NFCA is a non-profit association that is dedicated to raising awareness and supporting families with neurofibromatosis. Their vision is a world that neurofibromatosis is no longer an incurable condition. There are many ways you can get involved!
visit nfpittsburgh.org for more information!
kara
Wednesday, April 29, 2015
Events...Events...Events
So what are some big events that are held to raise awareness and money for Neurofibromatosis awareness? There are tons of fun events that you can choose from in an area near you.
Great Steps 4NF: The Great Steps 4NF™ Walks include the largest walk for NF in the country in Naperville, IL. These walks bring co-workers, friends and family together as one community for the neurofibromatosis cause
Run 4NF: NF Midwest
Walk on the Wild Side: Pittsburgh Zoo Walk for NF
Annual Golf Outing: Pittsburgh, PA
There are many many more events that are available and you can even create your own!
do some research, and support the events around you that are in support of Neurofibromatosis.
have a great day readers!
kara
Great Steps 4NF: The Great Steps 4NF™ Walks include the largest walk for NF in the country in Naperville, IL. These walks bring co-workers, friends and family together as one community for the neurofibromatosis cause
Run 4NF: NF Midwest
Walk on the Wild Side: Pittsburgh Zoo Walk for NF
Annual Golf Outing: Pittsburgh, PA
There are many many more events that are available and you can even create your own!
do some research, and support the events around you that are in support of Neurofibromatosis.
have a great day readers!
kara
Monday, April 27, 2015
Neurofibromatosis Summer Camps
Good afternoon readers!
So do you or your child have the genetic disorder Neurofibromatosis? If so, here is an awesome opportunity for your child to meet some friends that they can truly connect with. There is a summer camp that kids and young adults with Neurofibromatosis can attend and it is called Camp New Friends or Camp NF. It is a fun and supportive environment for young people with Neurofibromatosis. I would highly recommend trying it out or making a donation to the camp, it can make a huge difference!Camp New friends gives young people the opportunity to interact with older people and volunteers that live effectively with the same condition and give them hope for their future
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2015 Camp New Friends Dates:
July 19-25, 2014
High View, WV
Friday, April 24, 2015
Why is it important to spread awareness
Awareness about neurofibromatosis is important because not a lot of people are aware that it exists. Only 1 out of 3,000 people have NF1. So it is not too common. Even though nf is not too common, it is still crucial that you get the word out in any way you can. Raise awareness or raise money. Just don't try to sell cookies on a college campus cause apparently that doesn't work too well. May is neurofibromatosis awareness month. What are you going to do?
Kara
Tuesday, April 7, 2015
What are you gonna do?!
good evening readers,
or good morning...anyways, yesterday I talked about how may is Neurofibromatosis awareness month. But you definitely do not have to limit spreading awareness of this genetic disorder to just one month. Awareness is so important. Neurofibromatosis is not well known about at all to the public. In my experience with talking to people about it, unless its a medical professional, the person has never even heard about Neurofibromatosis. This is why YOU are so important in playing the important role of spreading awareness about this disorder. so that one day we can live in a world where people do not have to go through the pain and complications that NF can cause. So one day there can be a cure. What are you going to do to spread the word? Are you up to the challenge to shine the light upon Neurofibromatosis? not only in May but RIGHT NOW?
drop a comment and let me know what you are doing to spread the word
good night and thank you
Kara
or good morning...anyways, yesterday I talked about how may is Neurofibromatosis awareness month. But you definitely do not have to limit spreading awareness of this genetic disorder to just one month. Awareness is so important. Neurofibromatosis is not well known about at all to the public. In my experience with talking to people about it, unless its a medical professional, the person has never even heard about Neurofibromatosis. This is why YOU are so important in playing the important role of spreading awareness about this disorder. so that one day we can live in a world where people do not have to go through the pain and complications that NF can cause. So one day there can be a cure. What are you going to do to spread the word? Are you up to the challenge to shine the light upon Neurofibromatosis? not only in May but RIGHT NOW?
drop a comment and let me know what you are doing to spread the word
good night and thank you
Kara
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